North Central Florida Chapter: What the Rare Disease Patient Community Can Teach Us About Innovation

North Central Florida Chapter: What the Rare Disease Patient Community Can Teach Us About Innovation in Trials (ACRP 2024 Conference Replay) 

This event will be presenting a webinar replay from the ACRP Conference Library

Event Description:
Since the passage of the Orphan Drug Act in 1983, the rare disease patient community has been an active force in the advancement of research and innovation in clinical trials. This session explores the history of clinical research targeting rare diseases, the role rare disease patient advocates have played in advancing innovative clinical research methodologies (including decentralized clinical trials), and what the broader clinical research community can learn from the rare disease community about recruitment and diversity in clinical trials. 

Speaker:
Stephanie Christopher, MA, CCRC, FACRP
Director, Patient Advocacy, Pfizer 

Event Agenda:
11:45 a.m. – 12:00 p.m., EST – Registration and login
12:00 – 1:00 p.m., EST – Presentation
1:00 – 1:15 p.m., EST – Q&A 

Learning Objectives:

1. Understand how the rare disease patient community has helped advance clinical trial innovations including decentralized clinical trials
2. Apply lessons from are disease trial recruitment to advance recruitment of diverse clinical trial populations in other therapeutic areas
3. Describe how patients and researchers can partner together to design and execute patient centered research studies 

Registration & ACRP Contact Hour Information:
Click here to register and purchase the ACRP contact hour. This event will offer 1 ACRP contact hour. Please purchase and retrieve your contact hours before 12/15/24. 

• Chapter Member (registration with or without contact hour): $0
• ACRP Member (registration only): $0
• ACRP Member (registration + contact hour): $15
• Non-Member (registration only): $0
• Non-Member (registration + contact hour): $30
   

After registering, please visit the event's community page to find the login information or any additional event updates, and to communicate with the event organizer. 
 
To receive contact hours: Purchase the contact hours and attend the program. After attending the event, log on to the ACRP website and visit learning.acrpnet.org, click “GO TO MY COURSE”. Select your event, confirm attendance and take the event evaluation between 1 and 30 days following the event and obtain the online certificate." After 30 days, contact hours are no longer available